When I was pregnant with Samuel and after his birth, I had no examples of hope. We were told of two survivors who had lived in Japan. One passed at 3 years old and another at 7 years old. That is all we knew. No parents to call, no hope from the doctors, and no […]

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Initial Reaction After finding out I am a special needs mother, the kind hearted woman looked at me with sadness. Perhaps she thought of someone in her family raising a special needs child. Perhaps she grieved the loss of potential for my son. Perhaps she wondered how she would handle raising a special needs child. […]

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Finding Hope A Half A World Away There are over 200 types of dwarfism offering a wide range of diagnoses. Each diagnosis represents a little person, with varying characteristics and outcomes. For followers of Miracle Mann, you have become familiar with a specific type of dwarfism called Thanatophoric Dysplasia (TD). Considered lethal, this is a […]

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Happy Dwarfism Awareness Month When children meet Samuel, I like to ask how old they are.  They are usually under the age of ten. Then I ask how old they think Samuel is. Eyes grow wide. No questions come. Just a sweet, gentle acceptance. I may hear a giggle and then off they go to […]

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Expectations Exceeded I once told doctors that my son would surprise them. And, he did. Not expected to live past birth. He did. Then the expectation changed from days…then to months. What a celebration when he came home at six months old. Long term survival was not expected. He exceeded these expectations. And still does. […]

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I often say I’m a mom to miracle. My boy has survived a diagnosis which is usually dire, to say the least. This makes him a miracle. But, it also makes me a forever mom. First Came Love I married late in life because I found the absolute best husband for me. He was worth […]

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The Decision After the birth of our son, my husband and I were faced with a decision. A decision for our child to have surgery. The thought of my son being sedated and undergoing a procedure requiring a knife made me want to faint. The doctor assured me he’d always been successful in performing this […]

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Purpose Defined We all question our purpose at one point or another. But how do you define purpose? Merriam-Webster’s dictionary defines the word to mean the aim or goal of a person: what a person is trying to do, become. What does this mean practically? Do I have a good job? Am I successful? Do […]

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Canadian Adventures Exhilarated from seeing the scenic views of Grand Falls, New Brunswick, we checked into the Quality Inn for a one night stay before continuing on our journey. As the clerk looked up our prepaid reservation, I glimpsed the lobby behind me which had a flight of carpeted stairs leading to the second floor. […]

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